Canterbury Crohn’s
& Colitis Support Group
NewsLetter
Archive
June 2003
November 2003
April 2004
July 2004
May 2005
Canterbury Crohn’s &
Colitis Support Group
Patron: Prof. Philip Bagshaw
Academic Department of Surgery
Christchurch School of
Medicine
10 March 2006
General meeting:
Time:
Venue: Knox Centre,
Dear members,
I hope you all had a great
Christmas. We will be having a general
meeting shortly and our guest speaker will be Professor Keith Woodford. Professor Woodford will be giving a talk
called “Can A2 Milk Help Crohn’s Sufferers”.
Many people with Crohn’s have problems in digesting ordinary milk. However, a number of Crohn’s sufferers who
cannot eat dairy products are finding they can drink A2 milk without
problems. This A2 milk comes from
specially selected cows that have no A1 beta protein in their milk. The A1 beta protein (“the milk devil”) has
been implicated in a number of diseases including childhood diabetes, heart
disease, autism and schizophrenia. Keith
is confident that, although it is not the cause of Crohn’s disease, this “milk
devil” is the reason why many Crohn’s sufferers, and also people with other
digestive tract problems, have difficulties with dairy products.
After listening to Keith talk
you may decided that A2 milk, which is available in Christchurch, is worth a
try. We may have some of this milk for
people to try at the meeting.
Did you know?
The Canterbury CCSG was established by Mrs Joan Hawley (our
vice-president) in 1987 (19 years ago)?
CCSG Library
Later on in this newsletter
is a complete list of the library books that the CCSG have available to borrow
by any of our members. Please remember
that there is a $10.00 bond per book. It
is easier for us if you give us the bond in the form of a cheque and then once
the book is returned we will just dispose of the cheque. We have a three week borrowing period as some
books can be quite popular. Occasionally
we include reviews in our newsletters about books in our library, alternatively
they can be found on our website which is at the top of this page.
New Librarian
Trish
Lockington has stepped down from her position as librarian just recently, as
she is going on maternity leave soon. We
thank Trish for the all the time and effort she has put into the group and
welcome Pauline Mabey as our new librarian.
Pauline can be contacted on 349 3355.
Health Lecture Series 06
Enclosed is a copy of a
poster we have been sent advertising the Health Lecture Series 2006. Our very own Dr Richard Gearry will be giving
a talk on Wednesday April 5 at 7:30pm.
The CCSG will be having a display at this session and anyone is free to
go to any of the talks. Admission is
free. They will be held at the Rolleston
Lecture Theatre, 2 Riccarton Avenue. For
any more information please call 364 1199.
˜™˜™˜™˜™˜
I don’t know if any of you have
problems with your teeth but I certainly have noticed a rapid decline in the
quality of mine. I came across this the
other day and thought I’d include it in the newsletter (kindly reproduced from
the NACC (UK Crohn’s & Colitis) newsletter).
Readers’ Medical Queries ~ Tooth decay
Question: Is there any medical evidence of a
correlation between Crohn’s disease and gum/tooth decay?
Answer: A number of studies
have shown an association between increased dental caries and Crohn’s
disease. For example, a paper by Rooney
in Oral Surgery, Oral Medicine, Oral Pathology, 57(6):623-4, 1984 showed a
significantly greater number of decayed, missing or filled teeth compared to
two separate age-matched control groups.
The reasons are not clear but may include high sugar consumption,
alterations in saliva due to Crohn’s, oral inflammation as part of Crohn’s and
treatment with corticosteroids.
High sucrose consumption has
been consistently associated with Crohn’s disease over the years. As recently as 1997, an Israeli group (Reif
et al, Gut 40(6): 754-60, 1997 June) showed that pre-illness high consumption
of sucrose appeared to increase the risk of IBD three-fold compared to
population controls. It remains unknown
to what extent the high intake is an effect of an already present condition
(i.e. undiagnosed Crohn’s) or whether this is a genuine risk factor for
developing the disease. However, it has
been a consistent finding in studies over the years.
It is not known whether
low-carbohydrate diets will help Crohn’s disease as there is little work in
this area. There are reports of
improvements on reduction in refined carbohydrate and this is something we
observe anecdotally in clinical practice.
As one factor, it will certainly help to lower the risk of tooth decay/dental
caries. Corticosteroids, not just
because of dental caries, must always be used for minimum periods
possible. Whilst on steroids, patients
should pay particular attention to dental hygiene using standard measures
(brushing, flossing, mouthwashes) and, if possible (but difficult sometimes),
try to avoid responding to the stimulatory effects on appetite by eating
refined sugar.
Dr J Sanderson-Consultant Gastroenterologist, Guy’s
and St Thomas’ Hospitals.
2005-2006 Subscriptions
Are now due, as a friendly
reminder if you have not yet paid I have put a sticker on the front page. Please fill out the form below when paying
your subscription.
˜™˜™˜™˜™˜
If you have any
queries/suggestions etc, please don’t hesitate to call me on 03 388 0566.
Kind regards
Katrina
Stalker-Bailey
Katrina Stalker-Bailey
Secretary/Treasurer CCSG
NAME: Ms/Mr/Mrs/Miss/Dr ________________________________________________
ADDRESS: (Street)
_______________________________________________________
(Suburb) ________________________________________________________________
(Town/City) ________________________________ (post code)
___________________
TELEPHONE: ________________________ (home) ____________________
(business)
EMAIL ADDRESS: ____________________ D.O.B. (of person with IBD)
__________
Please tick this box if
your details have changed
Annual membership for you and
your family.......................... $15.00
unwaged/$20.00 waged
Please make cheques
payable to Canterbury Crohn’s & Colitis Support Group Inc. Attach this from and post to The Treasurer, CCSG, P O Box 2568,
Christchurch.
CCSG Library
• The Crohn’s and Colitis Fact Book
• Inflammatory Bowel Disease – The Gut Foundation
• Treating
IBD – by Brant and Steiner-Grossman. A patient’s
guide to the medical and surgical management of IBD
• If This is a Test, Have I Passed Yet? By Sherkin-Langer. The struggle to cope with IBD
• Living With Your Ostomy – Federation of New Zealand Ostomy
Societies
• Controlling Crohn's Disease: The
-
by Virginia M.
Harper, Tom Monte (Contributor)
• The
First Year---Crohn's Disease and Ulcerative Colitis: An Essential Guide for the
Newly Diagnosed
-
by Jill Sklar,
Manuel Sklar
• The
New Eating Right for a Bad Gut: The Complete Nutritional Guide to Ileitis,
Colitis, Crohn's Disease, and Inflammatory Bowel Disease
-
by James Scala
• Breaking the Vicious Cycle: Intestinal Health Through Diet
Millennium Edition
-
by Elaine Gloria
Gottschall, Patricia Wilson (Illustrator), Marilyn Jones (Illustrator)
• Understanding Crohn Disease and Ulcerative Colitis
-
by Jon Zonderman,
Ronald S. MD Vender, Bernardo Bertolucci
• The Angry Gut: Coping With Colitis and Crohn's Disease
-
by W. Grant
Thompson
• Crohn's Disease & Ulcerative Colitis
-
by Fred Saibil,
Fredric G. Saibil
• Irritable
Bowel Syndrome and the Mind Body Spirit Connection: 7 Steps for Living a
Healthy Life With a Functional Bowel Disorder, Crohn's Disease or Colitis
-
by William B.
Salt II, Neil F. Neimark
• Positive Options for Crohn's Disease: Self-Help and
Treatment
-
by Joan
Gomez
•
Coping with Crohn's Disease: Manage Your Physical Symptoms and Overcome the
Emotional Challenges
-
by Amy B.
Trachter, Henry Wodnicki
• Inflammatory Bowel Disease: A Clinical Approach
-
by Henry D.
Janowitz, Henry D. Janowtiz
• Intestinal
Inflammation (Colitis, Enteritis, Crohn's Disease): Treatment & Therapy:
Index of New Information
-
by Amer Health
Research Institue Staff
• What Your Doctor Doesn't Know About Nutritional Medicine
May Be Killing You
-
by Ray D.
Strand
• Coping
With Prednisone: (*and Other Cortisone-Related Medicines): It May Work
Miracles, but How Do You Handle the Side Effects
-
by Eugenia
Zukerman (Introduction), Julie R. Ingelfinger, Julies R. Ingelfinger
(Introduction)
• The IBD Nutrition Book
-
by Jan K.
Greenwood
• Good Food for Bad Stomachs
-
by Henry D.
Janowitz
• Your Gut Feelings: A Complete Guide to Living Better With
Intestinal Problems
-
by Henry Janowitz
• Inflammatory Bowel Disease: A Guide for Patients and Their
Families
-
Edited by:
Stanley H. Stein
VIDEOS
• Living with Inflammatory Bowel Disease – Auckland CCSG
• Living with Inflammatory Bowel Disease – Australian
Crohn’s and Colitis Association
• Living with IBD – National Foundation for Ileitis and
Colitis,
• Talk about Crohn’s – National Association for Colitis and
Crohn’s Disease (UK)
• “O” is for Ostomy – Federation of New Zealand Ostomy
Society
HEALTH LECTURE SERIES 2006
CHRISTCHURCH SCHOOL OF
MEDICINE AND HEALTH SCIENCES
2 Riccarton Avenue.
Rolleston Lecture Theatre
March 1 - April 19, 2006
www.chmeds.ac.nz
Wednesday
March 1,
ADVANCES IN TREATMENT OF LEUKAEMIA & BONE MARROW CANCERS
Dr Ruth
Spearing. Haematologist,
Wednesday
March 8,
THE ENVIRONMENT AND MULTIPLE SCLEROSIS
Associate
Professor Bruce Taylor. Neurologist, Department of Medicine
Wednesday
March 15,
SUICIDE AND THE MEDIA
Associate
Professor Annette Beautrais
Canterbury
Suicide Project, Department of Psychological Medicine
Wednesday
March 22, 7.30pm (Kidney Health Week)
RENAL FAILURE--DEATH OR DIALYSIS. BOTH BEST AVOIDED
Dr Martin Searle. Nephrologist, Christchurch Hospital
Wednesday
March 29,
EMERGENCE OF THE SUPER-BUGS
Professor
David Murdoch. Department of Pathology
Wednesday
April 5,
WHY INFLAMMATORY BOWEL DISEASE IS COMMON IN CANTERBURY
Dr Richard
Gearry. Gastroenterologist, Department of Medicine
Wednesday
April 12,
S0 YOU WANT TO SEE THE FUTURE……
Professor
Mark Elder. Ophthalmologist,
Wednesday
April 19,
THE SPECTRE OF A FLU PANDEMIC. IS IT INEVITABLE?
Dr Lance
Jennings. Virologist. Canterbury Health Laboratories
Free entry.
Discussion and questions. Displays from support groups.
The School
of Medicine and Health Sciences is at the front of Christchurch Hospital.
Parking available hospital car park, corner Tuam and Antigua Streets. Queries
364 1199